Bailynn’s Kidneys and more

Another day filled with phone calls from doctors, nurses, and insurance billing departments. Last week was a mess. Bailynn was diagnosed with a severe urinary tract infection. She is on antibiotics and off the rapamune until it is cleared up. She will have to have another urine analysis to make sure it is cleared up.… Read More

A Glimpse

I wonder what the other guests were thinking. This is my baby. If it horrified them, imagine how it made my heart feel. It it scared or alarmed them, imagine my endless sleepless nights filled with nightmares and worry. They got a glimpse – this is her everyday life – our everyday life. I wipe spit off my 14 year old daughter’s face. I change my 14 year old daughter’s diaper. They had a glimpse. Read More