I need to rant for a minute. 11 years ago Bob and I paid for home modifications for Bailynn. We put in laminate floors, ramps, put her a bedroom on the first floor and gutted our bathroom to make a roll in shower. This all went beautifully. Let me express that no one helped us… Read More
99 days ago Bailynn went into surgery with our expectations set to high and our stomachs full of butterflies. 99 days ago she had rods, that she needed and we didn’t want, placed back into her back for the 3rd time. 99 days ago everything seemed wonderful and then, the stegosaurus bones came out of… Read More
It has been nearly a month since I have found time to sit down and update on Bailynn and our family. I have been super busy with my little graphic design business, 5 Pink Peonies, and our family is enjoying the warm summer weather in our pool. We celebrated my husband’s 40th bday and, the… Read More
Bai will be 16 in less than 48 hours. How can this be?! I feel so incredibly thankful for her, her life, the days we have had, and the future we have yet to experience – good or bad. I never thought I’d get to celebrate, with her, her sweet 16. By God’s graces, the… Read More
It has taken me days to start typing up a summary of what happened with Bai’s CT scans last Wednesday. I always am searching for the right words. The right way to relay the message without hurt, without sadness, and mostly without pity. The girls and I hit the road last Wednesday and made our… Read More
My husband is an amazing carpenter! Read More
Wednesday the girls and I drove to Indy for Bailynn’s post op appointment at St. Vincent’s and for Lila to get her new mouth spacer put in at Riley. Bai was not happy with the car ride, either direction (I will share more about that below). She was however elated to get to leave the hospital with no… Read More
Monday we went and got fitted for the back brace. I made sure Bai had plenty of pain meds in her before we took this journey, and man am I glad I did. The guy who measured her was gentle and great, but it isn’t a quick process. They could have casted her – haha she… Read More
It has been a long two days since coming home. Though Bai has slept well over night, her days have been filled with tears, screaming and discomfort. Today was a little better, but not by a whole lot. The afternoon brought some happier temperament, then we removed the top bandage cause there is a small… Read More
Surgery went well today. The dural tear, that was allowing for the spinal fluid leak, was at the top of her spin where the goo blob use to be. The hooks that were removed with her rods 2 weeks ago were the culprit. The doctor had to remove a small portion of her vertebra bone… Read More
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