I need to rant for a minute. 11 years ago Bob and I paid for home modifications for Bailynn. We put in laminate floors, ramps, put her a bedroom on the first floor and gutted our bathroom to make a roll in shower. This all went beautifully. Let me express that no one helped us… Read More
Today I had one of those calls. Bai often needs these type of calls, I think she finds pleasure in taking out a shiny wrench from her satchel and tossing it light heartedly into our family spokes. Things had been going too well Bailynn. Much too well. We have had a great few weeks of summer.… Read More
It has been nearly a month since I have found time to sit down and update on Bailynn and our family. I have been super busy with my little graphic design business, 5 Pink Peonies, and our family is enjoying the warm summer weather in our pool. We celebrated my husband’s 40th bday and, the… Read More
Bai will be 16 in less than 48 hours. How can this be?! I feel so incredibly thankful for her, her life, the days we have had, and the future we have yet to experience – good or bad. I never thought I’d get to celebrate, with her, her sweet 16. By God’s graces, the… Read More
It has taken me days to start typing up a summary of what happened with Bai’s CT scans last Wednesday. I always am searching for the right words. The right way to relay the message without hurt, without sadness, and mostly without pity. The girls and I hit the road last Wednesday and made our… Read More
Most everyone who hops on here realizes how much I enjoy drawing. I have many of my pieces featured here, on fb, and for sale in my Etsy Shop, but most of you don’t know how each and every piece I create has a story. Like most I seek inspiration for what to draw next.… Read More
Surgery will be first thing in the morning tomorrow to repair the spinal fluid leak coming from Bailynn’s back. I will let everyone know how it goes after the procedure. We should be able to come home afterwards, but we are prepared to stay the night if not. She threw in her little bit of… Read More
The GOTCHA! sign just dropped like a boss! It couldn’t be this easy! We knew it couldn’t! Bailynn has spinal fluid leaking out her back. It is a small trickle, like tears. It looks like her back is crying. It has soaked her sheets and her pillow. A small trickle over time is still a… Read More
Bob and I successfully removed Bailynn humongous bandage from her back today and with no tears shed! Really, it was from her hairline to her booty crack! Ridiculously huge! She did fabulously! Her back looks amazing. Even with a huge incision down it, it looks awesome. There is no swelling. There are no rods poking… Read More
This day has played out so many different ways in my head. My dreams have been filled with fear, horror, and despair, but the reality, unbelievable resilience from a 15 year old girl. Her frail little frame, seemingly weak, filled with the strength of a mighty hero. Bailynn doesn’t cease to impress or inspire me.… Read More
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