An update on yesterday and today. Read More
Can you steam clean a bladder? NO?
Today I had one of those calls. Bai often needs these type of calls, I think she finds pleasure in taking out a shiny wrench from her satchel and tossing it light heartedly into our family spokes. Things had been going too well Bailynn. Much too well. We have had a great few weeks of summer.… Read More
The Battle of the Bladder
It has been nearly a month since I have found time to sit down and update on Bailynn and our family. I have been super busy with my little graphic design business, 5 Pink Peonies, and our family is enjoying the warm summer weather in our pool. We celebrated my husband’s 40th bday and, the… Read More
TSC made Us
Bai will be 16 in less than 48 hours. How can this be?! I feel so incredibly thankful for her, her life, the days we have had, and the future we have yet to experience – good or bad. I never thought I’d get to celebrate, with her, her sweet 16. By God’s graces, the… Read More
I have a filter – this is a good thing
It has taken me days to start typing up a summary of what happened with Bai’s CT scans last Wednesday. I always am searching for the right words. The right way to relay the message without hurt, without sadness, and mostly without pity. The girls and I hit the road last Wednesday and made our… Read More
Not just birds…freedom
Most everyone who hops on here realizes how much I enjoy drawing. I have many of my pieces featured here, on fb, and for sale in my Etsy Shop, but most of you don’t know how each and every piece I create has a story. Like most I seek inspiration for what to draw next.… Read More
Post Op
Wednesday the girls and I drove to Indy for Bailynn’s post op appointment at St. Vincent’s and for Lila to get her new mouth spacer put in at Riley. Bai was not happy with the car ride, either direction (I will share more about that below). She was however elated to get to leave the hospital with no… Read More
The brace
Monday we went and got fitted for the back brace. I made sure Bai had plenty of pain meds in her before we took this journey, and man am I glad I did. The guy who measured her was gentle and great, but it isn’t a quick process. They could have casted her – haha she… Read More
She’s OUT!
Surgery went well today. The dural tear, that was allowing for the spinal fluid leak, was at the top of her spin where the goo blob use to be. The hooks that were removed with her rods 2 weeks ago were the culprit. The doctor had to remove a small portion of her vertebra bone… Read More
The forecast shows signs of Surgery
The plan: We watch the spinal fluid leak over night, if it has not stopped by morning, we have to go to Indy and have a surgery done to repair the tear in the dural. They are on standby waiting for our return. At least it is an outpatient procedure. We have tightly bandaged the… Read More
5pinkpeonies.com 