The Reaction

Bailynn has had some kind of pressure point irritation or allergic reaction on her back. I really believe it is due to the combination of adhesive bandaging (which she always has issue with), neosporin, and pressure on the new rods and their placement.  She now has large irritation points on her back right where the… Read More

The Appointment Opening

It never happens that we have a trip to Indy, to see one of Bai’s specialists, and another calls to see if we could perhaps come on that exact day too. No. It typically goes, I made Bai 2 appointments for the same day – woohoo!!! – and 2 days before said appointments, one doctor… Read More

1 Day Post Surgery

To say Bailynn is doing fabulous is an understatement. She barely whimpered over night. She struggled with some potty issues, but they resolved. She had her back drain removed. She just gave her doctor a dirty look – didn’t flinch or cry. She has been in and out of sleep, has ate some applesauce and a small… Read More

My Worries

Here is what has happened in the last few weeks since learning that Bai has to have her rods removed. So, I last left you knowing that Bailynn’s rods are indeed infected and will have to be removed, but the surgeon wants to wait till at least March. This is to get through cold and… Read More

Our Warrior Fatigues and Christmas Wish

Bai’s new bed arrives tomorrow and we have to clear out the “institution” bed this evening to make room for it. It will be picked up Tuesday. Bob is in the garage making new runner boards for her beautiful white bead-board bed and touching it up with a fresh coat of paint. I am so… Read More

The Cold

Bai never gets a break. This past week she was stricken with a small cold her sisters lovingly shared with her – sense the sarcasm? Of course, she, unlike her sisters, could not clear the stupid thing! So off to the doctor we went and Bai is on another round of antibiotics. She is miserable.… Read More

Arwyn’s Birthday Party

In August we threw Arwyn an amazing Museum Inspired 10th Birthday Party. I got to design fun and unique graphics, stationary and signs – in Arwyn’s favorite color orange. I submitted Arwyn’s party and photos to the top party blog in the US, Hostess with the Mostess, and they chose it to be featured! Today it… Read More