I think this spring hit me a little harder than I had anticipated. My facebook stream started filling up with happy graduates; children Bai’s age. My feed had post after post of college visits and acceptance letters with smiling families – proud parents. My heart ached. Graduation cards started arriving in the mail and I… Read More
It never happens that we have a trip to Indy, to see one of Bai’s specialists, and another calls to see if we could perhaps come on that exact day too. No. It typically goes, I made Bai 2 appointments for the same day – woohoo!!! – and 2 days before said appointments, one doctor… Read More
Bob and I successfully removed Bailynn humongous bandage from her back today and with no tears shed! Really, it was from her hairline to her booty crack! Ridiculously huge! She did fabulously! Her back looks amazing. Even with a huge incision down it, it looks awesome. There is no swelling. There are no rods poking… Read More
On March 7th our family will adorn our “Love” and “Tough” t-shirts, designed for Bai, in support of her going into surgery. Not only is this a visual reminder, and a way to open a conversation about Bailynn, but it is a way to remember to pray for Bailynn all day. So we would encourage/ask everyone out there to wear their shirts too! We will take this prayer chain thing one step further! Read More
WE ARE SEARCHING FOR THIS TOY!
We lovingly call her SYLVIA
SHE IS A 2000 FISHER-PRICE SOFT RATTLE
HER HEAD RATTLES AND THE BLUE HANDLE AT BOTTOM MAKES CRUNCHY NOISE! Read More
Here is what has happened in the last few weeks since learning that Bai has to have her rods removed. So, I last left you knowing that Bailynn’s rods are indeed infected and will have to be removed, but the surgeon wants to wait till at least March. This is to get through cold and… Read More
Christmas has come and gone and we made it through with Bailynn’s back still holding together. We had so many wonderful experiences despite the chaos and crisis that was Bailynn. Here is what happened. Christmas Eve arrived with many a tasks at hand. Company coming, baking, cleaning, gifts, and Christmas so close. The girls were… Read More
Our journey has had its good and bad updates, its hard moments to swallow and get through. Today, I get to share a little bit of joy. I tiny furry bit of love. In an effort to find some Christmas joy and a some much needed snuggle love, our family went on the scouting expedition… Read More
Since the cast was removed two weeks ago, Bailynn has been in a miserable state. She was diagnosed with yet another UTI, she has spent hours screaming and crying, and she has started throwing up again due to being so upset. Her pain is distressing. Her tears are heartbreaking. We attempt all kinds of things… Read More
I have had such a positive response from everyone on the t-shirts they are receiving. Thank you to everyone who got one! I am also highly impressed with the quality of the shirt and the print! I have had a lot of people, after seeing them, ask where to get one! I thought about it… Read More
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