Collagen

It has taken me a bit to sit down and write this update because I simply didn’t want to jinx it! Collagen went in 2 weeks ago this Friday. My initial reaction was good, as was Bob’s and the plastic surgeon. The collagen injection went well, the overall appearance of the rods was diminished drastically… Read More

We Cushion the Bulge

Collagen injections will be done this coming Friday, May 19th, at Riley Children’s Hospital. She will have to stay overnight for observations. I called Cincinnati Children’s hospital yesterday to discuss Bailynn’s nutrition levels looking from a Tuberous Sclerosis perspective. I had a great conversation with a nurse there. I have been more than a little… Read More

The Reaction

Bailynn has had some kind of pressure point irritation or allergic reaction on her back. I really believe it is due to the combination of adhesive bandaging (which she always has issue with), neosporin, and pressure on the new rods and their placement.  She now has large irritation points on her back right where the… Read More

Rainy Day Bliss

Bai has had a great day. She has chilled in her room playing with toys, watching movies, and jamming to music. She has ate every drip of food I have given her. She has giggled at me!!!!!  I love days like this! Surgery recovery is always the worst, but today made the process a little… Read More

1 Day Post Surgery

She is doing well. Last night was rough, we really didn’t get situated in the room till nearly 2am. Bob thankfully got the girls back to the place they are staying, at a decent enough time, to shower and plummet into beds. After they left, Bai and I started the routine of rolling from side to… Read More