The Reaction

Bailynn has had some kind of pressure point irritation or allergic reaction on her back. I really believe it is due to the combination of adhesive bandaging (which she always has issue with), neosporin, and pressure on the new rods and their placement.  She now has large irritation points on her back right where the… Read More

Rainy Day Bliss

Bai has had a great day. She has chilled in her room playing with toys, watching movies, and jamming to music. She has ate every drip of food I have given her. She has giggled at me!!!!!  I love days like this! Surgery recovery is always the worst, but today made the process a little… Read More

1 Day Post Surgery

She is doing well. Last night was rough, we really didn’t get situated in the room till nearly 2am. Bob thankfully got the girls back to the place they are staying, at a decent enough time, to shower and plummet into beds. After they left, Bai and I started the routine of rolling from side to… Read More

Full Inpatient mode

She made it to her room a few hours ago. We’ve begun the battle for home now. She is doing really well. She drank some juice, swallowed the pills she needed to take tonight and closed her eyes to fall back asleep. We have a long night ahead of us and tomorrow will be the… Read More

Finally we have closed

They closed for hours. The Unicorn doctor came out and talked to us, a while ago. She did really well through out the procedure. They did decide to give her blood, though she only lost around 200cc. She has naturally low blood count cause of her bittiness. They are still harping about there vitamins and… Read More

They Never Believe Us!

Doctors tend to not believe us when we tell them how amazing Bai is – no really – they don’t. They see the frail little girl in a wheelchair. They see the chart full of blah, not the warrior before them. Blind. This morning, when this all began, we were told by multiple surgery staff… Read More