I think this spring hit me a little harder than I had anticipated. My facebook stream started filling up with happy graduates; children Bai’s age. My feed had post after post of college visits and acceptance letters with smiling families – proud parents. My heart ached. Graduation cards started arriving in the mail and I… Read More
The Rant
I need to rant for a minute. 11 years ago Bob and I paid for home modifications for Bailynn. We put in laminate floors, ramps, put her a bedroom on the first floor and gutted our bathroom to make a roll in shower. This all went beautifully. Let me express that no one helped us… Read More
99 days
99 days ago Bailynn went into surgery with our expectations set to high and our stomachs full of butterflies. 99 days ago she had rods, that she needed and we didn’t want, placed back into her back for the 3rd time. 99 days ago everything seemed wonderful and then, the stegosaurus bones came out of… Read More
Collagen
It has taken me a bit to sit down and write this update because I simply didn’t want to jinx it! Collagen went in 2 weeks ago this Friday. My initial reaction was good, as was Bob’s and the plastic surgeon. The collagen injection went well, the overall appearance of the rods was diminished drastically… Read More
The Reaction
Bailynn has had some kind of pressure point irritation or allergic reaction on her back. I really believe it is due to the combination of adhesive bandaging (which she always has issue with), neosporin, and pressure on the new rods and their placement. She now has large irritation points on her back right where the… Read More
4/27/17
An update on yesterday and today. Read More
The Appointment Opening
It never happens that we have a trip to Indy, to see one of Bai’s specialists, and another calls to see if we could perhaps come on that exact day too. No. It typically goes, I made Bai 2 appointments for the same day – woohoo!!! – and 2 days before said appointments, one doctor… Read More
ReBranding
From My5Girls to 5PinkPeonies Read More
Can you steam clean a bladder? NO?
Today I had one of those calls. Bai often needs these type of calls, I think she finds pleasure in taking out a shiny wrench from her satchel and tossing it light heartedly into our family spokes. Things had been going too well Bailynn. Much too well. We have had a great few weeks of summer.… Read More
The brace
Monday we went and got fitted for the back brace. I made sure Bai had plenty of pain meds in her before we took this journey, and man am I glad I did. The guy who measured her was gentle and great, but it isn’t a quick process. They could have casted her – haha she… Read More