99 days ago Bailynn went into surgery with our expectations set to high and our stomachs full of butterflies. 99 days ago she had rods, that she needed and we didn’t want, placed back into her back for the 3rd time. 99 days ago everything seemed wonderful and then, the stegosaurus bones came out of… Read More
It has taken me a bit to sit down and write this update because I simply didn’t want to jinx it! Collagen went in 2 weeks ago this Friday. My initial reaction was good, as was Bob’s and the plastic surgeon. The collagen injection went well, the overall appearance of the rods was diminished drastically… Read More
Collagen injections will be done this coming Friday, May 19th, at Riley Children’s Hospital. She will have to stay overnight for observations. I called Cincinnati Children’s hospital yesterday to discuss Bailynn’s nutrition levels looking from a Tuberous Sclerosis perspective. I had a great conversation with a nurse there. I have been more than a little… Read More
We drove to Indy yesterday to let the surgeons get a good look at her back. The first thing they booth said was that it looked better in person than in the photographs, something I tried to relay, but it is hard when we live in a visual world. Photographs can often askew coloring and… Read More
Bailynn has had some kind of pressure point irritation or allergic reaction on her back. I really believe it is due to the combination of adhesive bandaging (which she always has issue with), neosporin, and pressure on the new rods and their placement. She now has large irritation points on her back right where the… Read More
An update on yesterday and today. Read More
It never happens that we have a trip to Indy, to see one of Bai’s specialists, and another calls to see if we could perhaps come on that exact day too. No. It typically goes, I made Bai 2 appointments for the same day – woohoo!!! – and 2 days before said appointments, one doctor… Read More
From My5Girls to 5PinkPeonies Read More
It has been over 80 days, or 11 weeks, a little over 2 months, since a tree landed on our house and yard. Everything is fixed, except our roof and siding. We have been told that we are on the schedule for the end of this week, beginning of next. Fingers crossed! It has taken insanely long… Read More
Most everyone who hops on here realizes how much I enjoy drawing. I have many of my pieces featured here, on fb, and for sale in my Etsy Shop, but most of you don’t know how each and every piece I create has a story. Like most I seek inspiration for what to draw next.… Read More
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