4/27/17

An update on yesterday and today. Read More

The Appointment Opening

It never happens that we have a trip to Indy, to see one of Bai’s specialists, and another calls to see if we could perhaps come on that exact day too. No. It typically goes, I made Bai 2 appointments for the same day – woohoo!!! – and 2 days before said appointments, one doctor… Read More

Surgery

Surgery will be first thing in the morning tomorrow to repair the spinal fluid leak coming from Bailynn’s back. I will let everyone know how it goes after the procedure. We should be able to come home afterwards, but we are prepared to stay the night if not. She threw in her little bit of… Read More

1 week and 2 days post surgery

I dream of sleeping. I dream of laying on the ground hoping for sleep. I dream about how incredibly tired I am and I have not had massive surgery, so what does Bailynn dream about? Does she dream of operating rooms, fear, massive florescent lights and surgical masks? I have to wonder. I have to… Read More

5 Days Post Surgery

We have made it to Friday and Bai is still doing fabulous! She ate full meals today, we have weened her off her pain meds gradually today to see how low a dose and how long she can make it – long and low. The incision is still covered with a long bandage that we… Read More

Surgery Day at its End

This day has played out so many different ways in my head. My dreams have been filled with fear, horror, and despair, but the reality, unbelievable resilience from a 15 year old girl. Her frail little frame, seemingly weak, filled with the strength of a mighty hero. Bailynn doesn’t cease to impress or inspire me.… Read More

Never as planned

Here’s to the “plans” we all make, may we laugh together as they fall apart.
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Reoccurring Nightmares

I am not sleeping. Instead, I have fallen into a pattern of repeated bad dreams, no sleep, and lack of will to do my common “we are leaving” tasks.
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A modern day prayer chain for Bai

On March 7th our family will adorn our “Love” and “Tough” t-shirts, designed for Bai, in support of her going into surgery. Not only is this a visual reminder, and a way to open a conversation about Bailynn, but it is a way to remember to pray for Bailynn all day. So we would encourage/ask everyone out there to wear their shirts too! We will take this prayer chain thing one step further! Read More

20 Days & HELP US FIND SYLVIA!

WE ARE SEARCHING FOR THIS TOY!
We lovingly call her SYLVIA
SHE IS A 2000 FISHER-PRICE SOFT RATTLE
HER HEAD RATTLES AND THE BLUE HANDLE AT BOTTOM MAKES CRUNCHY NOISE! Read More