Crying and Screaming and Crying and Screaming

Wow, the last few days have been awful! Bai has cried and screamed like CRAZY!!! She is so uncomfortable. The cast is undeniably on her last nerve. The valium she is only taking smidgens of, is making her tummy upset. She can’t have anything in the ibuprofen family due to kidney failure. She can’t have tylenol… Read More

From Her Back to Her Toes

Yesterday the girls and I traveled to Indy for a follow up apointment with Dr. D, Bai’s orthopedic surgeon. I am happy to report that her back seems to have fully recovered from all its summer drama. I was told that once we left Indy in June with Bai’s back blowing up like a balloon… Read More

A family loss and a much unwanted trip

This marks week 5. So Bailynn was trapped in the house for a little over 4 weeks before we decided to make a trip out, only because the skin has sealed back up. It has however not returned to it’s pre-swelling state. Bob and I cautiously took the girls and her to Qdoba and Sams last… Read More

Her Back and My Stress Relief gone live!

It’s Monday and we are now at 18 days in the bed. Her back does look better. The bit of flesh that seemed to be hanging out of the gapping hole in her back has went back inside. The skin looks like it could seal back closed, if it would stop leaking and now bleeding.… Read More

Bailynn’s Kidneys and more

Another day filled with phone calls from doctors, nurses, and insurance billing departments. Last week was a mess. Bailynn was diagnosed with a severe urinary tract infection. She is on antibiotics and off the rapamune until it is cleared up. She will have to have another urine analysis to make sure it is cleared up.… Read More