A modern day prayer chain for Bai

On March 7th our family will adorn our “Love” and “Tough” t-shirts, designed for Bai, in support of her going into surgery. Not only is this a visual reminder, and a way to open a conversation about Bailynn, but it is a way to remember to pray for Bailynn all day. So we would encourage/ask everyone out there to wear their shirts too! We will take this prayer chain thing one step further! Read More

Her Tears and My Broken Heart

Since the cast was removed two weeks ago, Bailynn has been in a miserable state. She was diagnosed with yet another UTI, she has spent hours screaming and crying, and she has started throwing up again due to being so upset. Her pain is distressing. Her tears are heartbreaking. We attempt all kinds of things… Read More

A box full of broken mirrors

I feel like my family is stuck in a sick, dark version of the Groundhog Day movie. Our version is full of ridiculous superstitions that bombard us with misfortune.  We persistently live on Friday the 13 and I feel like we are delicately balancing a box full of broken mirrors across the cracked floor of the… Read More

A better week

Bailynn went from not sleeping, screaming, throwing up, not wanting to eat, to just fine. The magic potion? No more valium! Really! It seems the valium was just too much for her tummy and once it went away, she improved almost immediately. She still loathes her cast – I don’t blame her! Showers are a… Read More

Crying and Screaming and Crying and Screaming

Wow, the last few days have been awful! Bai has cried and screamed like CRAZY!!! She is so uncomfortable. The cast is undeniablyย on her last nerve. The valium she is only taking smidgens of, is making her tummy upset. She can’t have anything in the ibuprofen family due to kidney failure. She can’t have tylenol… Read More