My Worries

Here is what has happened in the last few weeks since learning that Bai has to have her rods removed. So, I last left you knowing that Bailynn’s rods are indeed infected and will have to be removed, but the surgeon wants to wait till at least March. This is to get through cold and… Read More

A box full of broken mirrors

I feel like my family is stuck in a sick, dark version of the Groundhog Day movie. Our version is full of ridiculous superstitions that bombard us with misfortune.  We persistently live on Friday the 13 and I feel like we are delicately balancing a box full of broken mirrors across the cracked floor of the… Read More

Crying and Screaming and Crying and Screaming

Wow, the last few days have been awful! Bai has cried and screamed like CRAZY!!! She is so uncomfortable. The cast is undeniably on her last nerve. The valium she is only taking smidgens of, is making her tummy upset. She can’t have anything in the ibuprofen family due to kidney failure. She can’t have tylenol… Read More

Keep your hands and feet in the ride at all times

Thursday Bob and I went to bed early knowing that the girls and I would have a long trip ahead of us in the morning. What we didn’t know is that Bailynn would decide to have multiple seizures, vomit, her suction machine would stop working, and she would cry for most all the night resulting… Read More

A family loss and a much unwanted trip

This marks week 5. So Bailynn was trapped in the house for a little over 4 weeks before we decided to make a trip out, only because the skin has sealed back up. It has however not returned to it’s pre-swelling state. Bob and I cautiously took the girls and her to Qdoba and Sams last… Read More

Her Back and My Stress Relief gone live!

It’s Monday and we are now at 18 days in the bed. Her back does look better. The bit of flesh that seemed to be hanging out of the gapping hole in her back has went back inside. The skin looks like it could seal back closed, if it would stop leaking and now bleeding.… Read More

Bailynn’s Letter to Finding Nemo

Disney will send your child a autographed photo if they write their favorite character! I had to write Bailynn’s today – since she obviously can’t. The other girls are working on theirs. I wanted to share Bailynn’s. She loves the Finding Nemo Movie so much! I will share what we receive back when we get… Read More