Surgery will be first thing in the morning tomorrow to repair the spinal fluid leak coming from Bailynn’s back. I will let everyone know how it goes after the procedure. We should be able to come home afterwards, but we are prepared to stay the night if not. She threw in her little bit of… Read More
1 week and 2 days post surgery
I dream of sleeping. I dream of laying on the ground hoping for sleep. I dream about how incredibly tired I am and I have not had massive surgery, so what does Bailynn dream about? Does she dream of operating rooms, fear, massive florescent lights and surgical masks? I have to wonder. I have to… Read More
The Bandage
Bob and I successfully removed Bailynn humongous bandage from her back today and with no tears shed! Really, it was from her hairline to her booty crack! Ridiculously huge! She did fabulously! Her back looks amazing. Even with a huge incision down it, it looks awesome. There is no swelling. There are no rods poking… Read More
5 Days Post Surgery
We have made it to Friday and Bai is still doing fabulous! She ate full meals today, we have weened her off her pain meds gradually today to see how low a dose and how long she can make it – long and low. The incision is still covered with a long bandage that we… Read More
Arwyn’s Birthday Party
In August we threw Arwyn an amazing Museum Inspired 10th Birthday Party. I got to design fun and unique graphics, stationary and signs – in Arwyn’s favorite color orange. I submitted Arwyn’s party and photos to the top party blog in the US, Hostess with the Mostess, and they chose it to be featured! Today it… Read More
A better week
Bailynn went from not sleeping, screaming, throwing up, not wanting to eat, to just fine. The magic potion? No more valium! Really! It seems the valium was just too much for her tummy and once it went away, she improved almost immediately. She still loathes her cast – I don’t blame her! Showers are a… Read More
A family loss and a much unwanted trip
This marks week 5. So Bailynn was trapped in the house for a little over 4 weeks before we decided to make a trip out, only because the skin has sealed back up. It has however not returned to it’s pre-swelling state. Bob and I cautiously took the girls and her to Qdoba and Sams last… Read More
Her Back and My Stress Relief gone live!
It’s Monday and we are now at 18 days in the bed. Her back does look better. The bit of flesh that seemed to be hanging out of the gapping hole in her back has went back inside. The skin looks like it could seal back closed, if it would stop leaking and now bleeding.… Read More