Most of you know that I started this endeavor of sharing Bailynn’s life story about 7 years ago just as she was going through a tough and long stage with STAPH infection in rods that had been placed on her spine. I spent days spilling information about Bailynn into the pages of her CaringBridge. Sharing… Read More
I often have people come up and tell me how special I am. I am even told that there is a very special place in Heaven saved just for me and people just like me. Why? Why am I so special? Because of Bailynn? Because I have 5 children? Because I keep myself calm and composed… Read More
Over a month has passed since my last update – the time slips away. Here is what has happened. Bailynn’s back has still not recovered fully to what it looked like before the trauma, whatever that was, though I can not dismiss its vast improvement from June. She finished all her rounds of antibiotics, got… Read More
Thursday Bob and I went to bed early knowing that the girls and I would have a long trip ahead of us in the morning. What we didn’t know is that Bailynn would decide to have multiple seizures, vomit, her suction machine would stop working, and she would cry for most all the night resulting… Read More
This marks week 5. So Bailynn was trapped in the house for a little over 4 weeks before we decided to make a trip out, only because the skin has sealed back up. It has however not returned to it’s pre-swelling state. Bob and I cautiously took the girls and her to Qdoba and Sams last… Read More
Bailynn finally got to sit up in her chair for a small amount of time the other night. She loved it! She giggled and waved her toys about. She blew raspberries and smiled from ear to ear!!! She was so excited to be out of her bed and playing. She got to watch me change… Read More
It’s Monday and we are now at 18 days in the bed. Her back does look better. The bit of flesh that seemed to be hanging out of the gapping hole in her back has went back inside. The skin looks like it could seal back closed, if it would stop leaking and now bleeding.… Read More
Last night….. Bob called me and told me that he was going to have to work very late due to overtime and some equipment he had to look at. I sat the girls down for a family meeting and laid out our evening. First, I really needed to give Bai a shower and change her… Read More
So, this morning I got up and took care of my furry family. I was about to start my ritualistic morning pot of coffee when I heard Bailynn go into a seizure in her room. This is the last thing she needs to be doing with her back in the state that it is in.… Read More
Today I finally heard back from Bailynn’s orthopedic surgeon who just looked at the pics I sent yesterday, today. His opinion is much like ours, “It looks awful, lets still wait and see. Surgery is the last thing we want.” Amen! Her back is not worse, by any means, but it also not significantly better.… Read More
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