In August we threw Arwyn an amazing Museum Inspired 10th Birthday Party. I got to design fun and unique graphics, stationary and signs – in Arwyn’s favorite color orange. I submitted Arwyn’s party and photos to the top party blog in the US, Hostess with the Mostess, and they chose it to be featured! Today it… Read More
Sunday I took a sample to the ER for another examination. Bailynn’s urine is STILL growing bacteria. They are going to grow it out and make sure she is taking the right antibiotic to treat it. This last round of antibiotic really upset her stomach and they are hoping to use a less harsh one.… Read More
Since the cast was removed two weeks ago, Bailynn has been in a miserable state. She was diagnosed with yet another UTI, she has spent hours screaming and crying, and she has started throwing up again due to being so upset. Her pain is distressing. Her tears are heartbreaking. We attempt all kinds of things… Read More
I feel like my family is stuck in a sick, dark version of the Groundhog Day movie. Our version is full of ridiculous superstitions that bombard us with misfortune. We persistently live on Friday the 13 and I feel like we are delicately balancing a box full of broken mirrors across the cracked floor of the… Read More
Bailynn went from not sleeping, screaming, throwing up, not wanting to eat, to just fine. The magic potion? No more valium! Really! It seems the valium was just too much for her tummy and once it went away, she improved almost immediately. She still loathes her cast – I don’t blame her! Showers are a… Read More
Wow, the last few days have been awful! Bai has cried and screamed like CRAZY!!! She is so uncomfortable. The cast is undeniably on her last nerve. The valium she is only taking smidgens of, is making her tummy upset. She can’t have anything in the ibuprofen family due to kidney failure. She can’t have tylenol… Read More
Yesterday the girls and I traveled to Indy for a follow up apointment with Dr. D, Bai’s orthopedic surgeon. I am happy to report that her back seems to have fully recovered from all its summer drama. I was told that once we left Indy in June with Bai’s back blowing up like a balloon… Read More
Most of you know that I started this endeavor of sharing Bailynn’s life story about 7 years ago just as she was going through a tough and long stage with STAPH infection in rods that had been placed on her spine. I spent days spilling information about Bailynn into the pages of her CaringBridge. Sharing… Read More
I often have people come up and tell me how special I am. I am even told that there is a very special place in Heaven saved just for me and people just like me. Why? Why am I so special? Because of Bailynn? Because I have 5 children? Because I keep myself calm and composed… Read More
Over a month has passed since my last update – the time slips away. Here is what has happened. Bailynn’s back has still not recovered fully to what it looked like before the trauma, whatever that was, though I can not dismiss its vast improvement from June. She finished all her rounds of antibiotics, got… Read More
