Thursday Bob and I went to bed early knowing that the girls and I would have a long trip ahead of us in the morning. What we didn’t know is that Bailynn would decide to have multiple seizures, vomit, her suction machine would stop working, and she would cry for most all the night resulting… Read More
This marks week 5. So Bailynn was trapped in the house for a little over 4 weeks before we decided to make a trip out, only because the skin has sealed back up. It has however not returned to it’s pre-swelling state. Bob and I cautiously took the girls and her to Qdoba and Sams last… Read More
It’s Monday and we are now at 18 days in the bed. Her back does look better. The bit of flesh that seemed to be hanging out of the gapping hole in her back has went back inside. The skin looks like it could seal back closed, if it would stop leaking and now bleeding.… Read More
Last night….. Bob called me and told me that he was going to have to work very late due to overtime and some equipment he had to look at. I sat the girls down for a family meeting and laid out our evening. First, I really needed to give Bai a shower and change her… Read More
So, this morning I got up and took care of my furry family. I was about to start my ritualistic morning pot of coffee when I heard Bailynn go into a seizure in her room. This is the last thing she needs to be doing with her back in the state that it is in.… Read More
Today I finally heard back from Bailynn’s orthopedic surgeon who just looked at the pics I sent yesterday, today. His opinion is much like ours, “It looks awful, lets still wait and see. Surgery is the last thing we want.” Amen! Her back is not worse, by any means, but it also not significantly better.… Read More
Bailynn’s back looks ever-so-slightly better. The swelling has reduced a very small amount and the bright red inflamed color has diminished a bit as well. She is pretty well stuck in her bed watching movies and rattling toys until we can resolve this issue. We gave her a very gentle shower last night and took… Read More
Our endless journey with spinal rods…. Read More
Looking for Magic. Read More
Disney will send your child a autographed photo if they write their favorite character! I had to write Bailynn’s today – since she obviously can’t. The other girls are working on theirs. I wanted to share Bailynn’s. She loves the Finding Nemo Movie so much! I will share what we receive back when we get… Read More
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