We got up super early yesterday and made the drive to Indy. I seemed like the shortest trip up and back ever – especially having surgery. Surgery was short and went well. Three of Bailynn’s tendons on the top of her foot were released and a HUGE pink cast put on her leg and foot.… Read More
From Her Back to Her Toes
Yesterday the girls and I traveled to Indy for a follow up apointment with Dr. D, Bai’s orthopedic surgeon. I am happy to report that her back seems to have fully recovered from all its summer drama. I was told that once we left Indy in June with Bai’s back blowing up like a balloon… Read More
For Her
Most of you know that I started this endeavor of sharing Bailynn’s life story about 7 years ago just as she was going through a tough and long stage with STAPH infection in rods that had been placed on her spine. I spent days spilling information about Bailynn into the pages of her CaringBridge. Sharing… Read More
I’m not special
I often have people come up and tell me how special I am. I am even told that there is a very special place in Heaven saved just for me and people just like me. Why? Why am I so special? Because of Bailynn? Because I have 5 children? Because I keep myself calm and composed… Read More
Fevers and UTIs
Over a month has passed since my last update – the time slips away. Here is what has happened. Bailynn’s back has still not recovered fully to what it looked like before the trauma, whatever that was, though I can not dismiss its vast improvement from June. She finished all her rounds of antibiotics, got… Read More
Keep your hands and feet in the ride at all times
Thursday Bob and I went to bed early knowing that the girls and I would have a long trip ahead of us in the morning. What we didn’t know is that Bailynn would decide to have multiple seizures, vomit, her suction machine would stop working, and she would cry for most all the night resulting… Read More
A family loss and a much unwanted trip
This marks week 5. So Bailynn was trapped in the house for a little over 4 weeks before we decided to make a trip out, only because the skin has sealed back up. It has however not returned to it’s pre-swelling state. Bob and I cautiously took the girls and her to Qdoba and Sams last… Read More
Her Back and My Stress Relief gone live!
It’s Monday and we are now at 18 days in the bed. Her back does look better. The bit of flesh that seemed to be hanging out of the gapping hole in her back has went back inside. The skin looks like it could seal back closed, if it would stop leaking and now bleeding.… Read More
The sweetest of sisters – We go when she can!
Last night….. Bob called me and told me that he was going to have to work very late due to overtime and some equipment he had to look at. I sat the girls down for a family meeting and laid out our evening. First, I really needed to give Bai a shower and change her… Read More
My morning coffee with a side of seizure
So, this morning I got up and took care of my furry family. I was about to start my ritualistic morning pot of coffee when I heard Bailynn go into a seizure in her room. This is the last thing she needs to be doing with her back in the state that it is in.… Read More
