I took Bai this morning and got her hair whacked real short. The girl who cuts her hair did a fabulous job, though I still don’t like it this short. It is best for it to be completely out of the way prior to surgery Monday, so it went. Sad. Gone. I remember when I… Read More
I am not sleeping. Instead, I have fallen into a pattern of repeated bad dreams, no sleep, and lack of will to do my common “we are leaving” tasks.
WE ARE SEARCHING FOR THIS TOY!
We lovingly call her SYLVIA
SHE IS A 2000 FISHER-PRICE SOFT RATTLE
HER HEAD RATTLES AND THE BLUE HANDLE AT BOTTOM MAKES CRUNCHY NOISE! Read More
Surgery date is set. Read More
Our journey has had its good and bad updates, its hard moments to swallow and get through. Today, I get to share a little bit of joy. I tiny furry bit of love. In an effort to find some Christmas joy and a some much needed snuggle love, our family went on the scouting expedition… Read More
Wow, the last few days have been awful! Bai has cried and screamed like CRAZY!!! She is so uncomfortable. The cast is undeniably on her last nerve. The valium she is only taking smidgens of, is making her tummy upset. She can’t have anything in the ibuprofen family due to kidney failure. She can’t have tylenol… Read More
We got up super early yesterday and made the drive to Indy. I seemed like the shortest trip up and back ever – especially having surgery. Surgery was short and went well. Three of Bailynn’s tendons on the top of her foot were released and a HUGE pink cast put on her leg and foot.… Read More
Yesterday the girls and I traveled to Indy for a follow up apointment with Dr. D, Bai’s orthopedic surgeon. I am happy to report that her back seems to have fully recovered from all its summer drama. I was told that once we left Indy in June with Bai’s back blowing up like a balloon… Read More
Most of you know that I started this endeavor of sharing Bailynn’s life story about 7 years ago just as she was going through a tough and long stage with STAPH infection in rods that had been placed on her spine. I spent days spilling information about Bailynn into the pages of her CaringBridge. Sharing… Read More
I often have people come up and tell me how special I am. I am even told that there is a very special place in Heaven saved just for me and people just like me. Why? Why am I so special? Because of Bailynn? Because I have 5 children? Because I keep myself calm and composed… Read More