To say Bailynn is doing fabulous is an understatement. She barely whimpered over night. She struggled with some potty issues, but they resolved. She had her back drain removed. She just gave her doctor a dirty look – didn’t flinch or cry. She has been in and out of sleep, has ate some applesauce and a small… Read More
This day has played out so many different ways in my head. My dreams have been filled with fear, horror, and despair, but the reality, unbelievable resilience from a 15 year old girl. Her frail little frame, seemingly weak, filled with the strength of a mighty hero. Bailynn doesn’t cease to impress or inspire me.… Read More
She is out and in her room. Room 4016. Her face is very swollen. The morphine and Valium have her pretty out of it. There are some issues with a Dural tear. I’ll update on that later, but she is doing well otherwise. For her Bobbi
We drove up to Indy last evening, after saying goodbye to our furry bunch, and tucked into our hotel room. Happy spring break to this homeschooling crew. Sleep eluded us and I will admit that we stayed up way later than we ever do watching the food network and trying to get through the night.… Read More
2 days. Bailynn slept through the night, and though she has still had a few seizures, she is looking a little less out of it today. She isn’t eating much, she isn’t peppy, but she is at least interested in watching a movie and throwing me a dirty look or 2. Possibly because I took… Read More
Here’s to the “plans” we all make, may we laugh together as they fall apart.
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I took Bai this morning and got her hair whacked real short. The girl who cuts her hair did a fabulous job, though I still don’t like it this short. It is best for it to be completely out of the way prior to surgery Monday, so it went. Sad. Gone. I remember when I… Read More
I am not sleeping. Instead, I have fallen into a pattern of repeated bad dreams, no sleep, and lack of will to do my common “we are leaving” tasks.
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On March 7th our family will adorn our “Love” and “Tough” t-shirts, designed for Bai, in support of her going into surgery. Not only is this a visual reminder, and a way to open a conversation about Bailynn, but it is a way to remember to pray for Bailynn all day. So we would encourage/ask everyone out there to wear their shirts too! We will take this prayer chain thing one step further! Read More
WE ARE SEARCHING FOR THIS TOY!
We lovingly call her SYLVIA
SHE IS A 2000 FISHER-PRICE SOFT RATTLE
HER HEAD RATTLES AND THE BLUE HANDLE AT BOTTOM MAKES CRUNCHY NOISE! Read More
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