Surgery date is set. Read More
My Worries
Here is what has happened in the last few weeks since learning that Bai has to have her rods removed. So, I last left you knowing that Bailynn’s rods are indeed infected and will have to be removed, but the surgeon wants to wait till at least March. This is to get through cold and… Read More
The Battle is lost
The rods have won. We head for surgery. Read More
Biaggi’s
Christmas has come and gone and we made it through with Bailynn’s back still holding together. We had so many wonderful experiences despite the chaos and crisis that was Bailynn. Here is what happened. Christmas Eve arrived with many a tasks at hand. Company coming, baking, cleaning, gifts, and Christmas so close. The girls were… Read More
Our Nightmare before Christmas
Last night the bubble on Bailynn’s back burst. Just like this past summer. It is oozing and swelling and the most frightening thing to witness in real life. The swelling has migrated to her shoulder. Her drainage is gross. No joy and jingles here, just prayers. No tinsel and no holiday cheer. Just fear. I… Read More
Our Warrior Fatigues and Christmas Wish
Bai’s new bed arrives tomorrow and we have to clear out the “institution” bed this evening to make room for it. It will be picked up Tuesday. Bob is in the garage making new runner boards for her beautiful white bead-board bed and touching it up with a fresh coat of paint. I am so… Read More
The princess and the patient
It started after Bai got sick a little over a month ago, we saw how bad she struggles to clear mucus while laying flat. She spent days throwing up while choking on drainage in her throat and we fought to try to get her even a smidgen upright. A trip to the pediatrician for medications,… Read More
An Early Christmas
Our journey has had its good and bad updates, its hard moments to swallow and get through. Today, I get to share a little bit of joy. I tiny furry bit of love. In an effort to find some Christmas joy and a some much needed snuggle love, our family went on the scouting expedition… Read More
The Cold
Bai never gets a break. This past week she was stricken with a small cold her sisters lovingly shared with her – sense the sarcasm? Of course, she, unlike her sisters, could not clear the stupid thing! So off to the doctor we went and Bai is on another round of antibiotics. She is miserable.… Read More
Arwyn’s Birthday Party
In August we threw Arwyn an amazing Museum Inspired 10th Birthday Party. I got to design fun and unique graphics, stationary and signs – in Arwyn’s favorite color orange. I submitted Arwyn’s party and photos to the top party blog in the US, Hostess with the Mostess, and they chose it to be featured! Today it… Read More
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