My Worries

Here is what has happened in the last few weeks since learning that Bai has to have her rods removed. So, I last left you knowing that Bailynn’s rods are indeed infected and will have to be removed, but the surgeon wants to wait till at least March. This is to get through cold and… Read More

Our Warrior Fatigues and Christmas Wish

Bai’s new bed arrives tomorrow and we have to clear out the “institution” bed this evening to make room for it. It will be picked up Tuesday. Bob is in the garage making new runner boards for her beautiful white bead-board bed and touching it up with a fresh coat of paint. I am so… Read More

The princess and the patient

It started after Bai got sick a little over a month ago, we saw how bad she struggles to clear mucus while laying flat. She spent days throwing up while choking on drainage in her throat and we fought to try to get her even a smidgen upright. A trip to the pediatrician for medications,… Read More

From Her Back to Her Toes

Yesterday the girls and I traveled to Indy for a follow up apointment with Dr. D, Bai’s orthopedic surgeon. I am happy to report that her back seems to have fully recovered from all its summer drama. I was told that once we left Indy in June with Bai’s back blowing up like a balloon… Read More

A family loss and a much unwanted trip

This marks week 5. So Bailynn was trapped in the house for a little over 4 weeks before we decidedย to make a trip out, only because the skin has sealed back up. It has however not returned to it’s pre-swelling state. Bob and I cautiously took the girls and her to Qdoba and Sams last… Read More

Her Back and My Stress Relief gone live!

It’s Monday and we are now at 18 days in the bed. Her back does look better. The bit of flesh that seemed to be hanging out of the gapping hole in her back has went back inside. The skin looks like it could seal back closed, if it would stop leaking and now bleeding.… Read More