The GOTCHA! sign just dropped like a boss! It couldn’t be this easy! We knew it couldn’t! Bailynn has spinal fluid leaking out her back. It is a small trickle, like tears. It looks like her back is crying. It has soaked her sheets and her pillow. A small trickle over time is still a… Read More
Bob and I successfully removed Bailynn humongous bandage from her back today and with no tears shed! Really, it was from her hairline to her booty crack! Ridiculously huge! She did fabulously! Her back looks amazing. Even with a huge incision down it, it looks awesome. There is no swelling. There are no rods poking… Read More
We made it home!!!! Happy Hammonds Family here! We have got some hugs & licks in with our missed furry family, I have rolled 2 loads of laundry, ran to the grocery store, and watched the girls leap around in joy. Home is our favorite place! To think I spent another sleepless night on a hospital… Read More
To say Bailynn is doing fabulous is an understatement. She barely whimpered over night. She struggled with some potty issues, but they resolved. She had her back drain removed. She just gave her doctor a dirty look – didn’t flinch or cry. She has been in and out of sleep, has ate some applesauce and a small… Read More
This day has played out so many different ways in my head. My dreams have been filled with fear, horror, and despair, but the reality, unbelievable resilience from a 15 year old girl. Her frail little frame, seemingly weak, filled with the strength of a mighty hero. Bailynn doesn’t cease to impress or inspire me.… Read More
We drove up to Indy last evening, after saying goodbye to our furry bunch, and tucked into our hotel room. Happy spring break to this homeschooling crew. Sleep eluded us and I will admit that we stayed up way later than we ever do watching the food network and trying to get through the night.… Read More
2 days. Bailynn slept through the night, and though she has still had a few seizures, she is looking a little less out of it today. She isn’t eating much, she isn’t peppy, but she is at least interested in watching a movie and throwing me a dirty look or 2. Possibly because I took… Read More
Here’s to the “plans” we all make, may we laugh together as they fall apart.
I am not sleeping. Instead, I have fallen into a pattern of repeated bad dreams, no sleep, and lack of will to do my common “we are leaving” tasks.
On March 7th our family will adorn our “Love” and “Tough” t-shirts, designed for Bai, in support of her going into surgery. Not only is this a visual reminder, and a way to open a conversation about Bailynn, but it is a way to remember to pray for Bailynn all day. So we would encourage/ask everyone out there to wear their shirts too! We will take this prayer chain thing one step further! Read More