2 days. Bailynn slept through the night, and though she has still had a few seizures, she is looking a little less out of it today. She isn’t eating much, she isn’t peppy, but she is at least interested in watching a movie and throwing me a dirty look or 2. Possibly because I took… Read More
Never as planned
Here’s to the “plans” we all make, may we laugh together as they fall apart.
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Goodbye Hair
I took Bai this morning and got her hair whacked real short. The girl who cuts her hair did a fabulous job, though I still don’t like it this short. It is best for it to be completely out of the way prior to surgery Monday, so it went. Sad. Gone. I remember when I… Read More
Reoccurring Nightmares
I am not sleeping. Instead, I have fallen into a pattern of repeated bad dreams, no sleep, and lack of will to do my common “we are leaving” tasks.
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A modern day prayer chain for Bai
On March 7th our family will adorn our “Love” and “Tough” t-shirts, designed for Bai, in support of her going into surgery. Not only is this a visual reminder, and a way to open a conversation about Bailynn, but it is a way to remember to pray for Bailynn all day. So we would encourage/ask everyone out there to wear their shirts too! We will take this prayer chain thing one step further! Read More
20 Days & HELP US FIND SYLVIA!
WE ARE SEARCHING FOR THIS TOY!
We lovingly call her SYLVIA
SHE IS A 2000 FISHER-PRICE SOFT RATTLE
HER HEAD RATTLES AND THE BLUE HANDLE AT BOTTOM MAKES CRUNCHY NOISE! Read More
The date is set
Surgery date is set. Read More
My Worries
Here is what has happened in the last few weeks since learning that Bai has to have her rods removed. So, I last left you knowing that Bailynn’s rods are indeed infected and will have to be removed, but the surgeon wants to wait till at least March. This is to get through cold and… Read More
The Battle is lost
The rods have won. We head for surgery. Read More
Biaggi’s
Christmas has come and gone and we made it through with Bailynn’s back still holding together. We had so many wonderful experiences despite the chaos and crisis that was Bailynn. Here is what happened. Christmas Eve arrived with many a tasks at hand. Company coming, baking, cleaning, gifts, and Christmas so close. The girls were… Read More
