We drove up to Indy last evening, after saying goodbye to our furry bunch, and tucked into our hotel room. Happy spring break to this homeschooling crew. Sleep eluded us and I will admit that we stayed up way later than we ever do watching the food network and trying to get through the night.… Read More
2 days. Bailynn slept through the night, and though she has still had a few seizures, she is looking a little less out of it today. She isn’t eating much, she isn’t peppy, but she is at least interested in watching a movie and throwing me a dirty look or 2. Possibly because I took… Read More
Here’s to the “plans” we all make, may we laugh together as they fall apart.
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I am not sleeping. Instead, I have fallen into a pattern of repeated bad dreams, no sleep, and lack of will to do my common “we are leaving” tasks.
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On March 7th our family will adorn our “Love” and “Tough” t-shirts, designed for Bai, in support of her going into surgery. Not only is this a visual reminder, and a way to open a conversation about Bailynn, but it is a way to remember to pray for Bailynn all day. So we would encourage/ask everyone out there to wear their shirts too! We will take this prayer chain thing one step further! Read More
WE ARE SEARCHING FOR THIS TOY!
We lovingly call her SYLVIA
SHE IS A 2000 FISHER-PRICE SOFT RATTLE
HER HEAD RATTLES AND THE BLUE HANDLE AT BOTTOM MAKES CRUNCHY NOISE! Read More
Surgery date is set. Read More
Here is what has happened in the last few weeks since learning that Bai has to have her rods removed. So, I last left you knowing that Bailynn’s rods are indeed infected and will have to be removed, but the surgeon wants to wait till at least March. This is to get through cold and… Read More
The rods have won. We head for surgery. Read More
Since the cast was removed two weeks ago, Bailynn has been in a miserable state. She was diagnosed with yet another UTI, she has spent hours screaming and crying, and she has started throwing up again due to being so upset. Her pain is distressing. Her tears are heartbreaking. We attempt all kinds of things… Read More
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