Our Warrior Fatigues and Christmas Wish

Bai’s new bed arrives tomorrow and we have to clear out the “institution” bed this evening to make room for it. It will be picked up Tuesday. Bob is in the garage making new runner boards for her beautiful white bead-board bed and touching it up with a fresh coat of paint. I am so… Read More

The Cold

Bai never gets a break. This past week she was stricken with a small cold her sisters lovingly shared with her – sense the sarcasm? Of course, she, unlike her sisters, could not clear the stupid thing! So off to the doctor we went and Bai is on another round of antibiotics. She is miserable.… Read More

Her Tears and My Broken Heart

Since the cast was removed two weeks ago, Bailynn has been in a miserable state. She was diagnosed with yet another UTI, she has spent hours screaming and crying, and she has started throwing up again due to being so upset. Her pain is distressing. Her tears are heartbreaking. We attempt all kinds of things… Read More

A box full of broken mirrors

I feel like my family is stuck in a sick, dark version of the Groundhog Day movie. Our version is full of ridiculous superstitions that bombard us with misfortune.  We persistently live on Friday the 13 and I feel like we are delicately balancing a box full of broken mirrors across the cracked floor of the… Read More

A better week

Bailynn went from not sleeping, screaming, throwing up, not wanting to eat, to just fine. The magic potion? No more valium! Really! It seems the valium was just too much for her tummy and once it went away, she improved almost immediately. She still loathes her cast – I don’t blame her! Showers are a… Read More

Crying and Screaming and Crying and Screaming

Wow, the last few days have been awful! Bai has cried and screamed like CRAZY!!! She is so uncomfortable. The cast is undeniably on her last nerve. The valium she is only taking smidgens of, is making her tummy upset. She can’t have anything in the ibuprofen family due to kidney failure. She can’t have tylenol… Read More