Hippity Hoppity we are not

It has been a long two days since coming home. Though Bai has slept well over night, her days have been filled with tears, screaming and discomfort. Today was a little better, but not by a whole lot. The afternoon brought some happier temperament, then we removed the top bandage cause there is a small… Read More

She’s OUT!

Surgery went well today. The dural tear, that was allowing for the spinal fluid leak, was at the top of her spin where the goo blob use to be. The hooks that were removed with her rods 2 weeks ago were the culprit. The doctor had to remove a small portion of her vertebra bone… Read More

Surgery

Surgery will be first thing in the morning tomorrow to repair the spinal fluid leak coming from Bailynn’s back. I will let everyone know how it goes after the procedure. We should be able to come home afterwards, but we are prepared to stay the night if not. She threw in her little bit of… Read More

GOTCHA!!!

The GOTCHA! sign just dropped like a boss! It couldn’t be this easy! We knew it couldn’t! Bailynn has spinal fluid leaking out her back. It is a small trickle, like tears. It looks like her back is crying. It has soaked her sheets and her pillow. A small trickle over time is still a… Read More

5 Days Post Surgery

We have made it to Friday and Bai is still doing fabulous! She ate full meals today, we have weened her off her pain meds gradually today to see how low a dose and how long she can make it – long and low. The incision is still covered with a long bandage that we… Read More

1 Day Post Surgery

To say Bailynn is doing fabulous is an understatement. She barely whimpered over night. She struggled with some potty issues, but they resolved. She had her back drain removed. She just gave her doctor a dirty look – didn’t flinch or cry. She has been in and out of sleep, has ate some applesauce and a small… Read More

Never as planned

Here’s to the “plans” we all make, may we laugh together as they fall apart.
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Goodbye Hair

I took Bai this morning and got her hair whacked real short. The girl who cuts her hair did a fabulous job, though I still don’t like it this short. It is best for it to be completely out of the way prior to surgery Monday, so it went. Sad. Gone. I remember when I… Read More

20 Days & HELP US FIND SYLVIA!

WE ARE SEARCHING FOR THIS TOY!
We lovingly call her SYLVIA
SHE IS A 2000 FISHER-PRICE SOFT RATTLE
HER HEAD RATTLES AND THE BLUE HANDLE AT BOTTOM MAKES CRUNCHY NOISE! Read More